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Dravet syndrome is actually a developmental and epileptic encephalopathy which has early onset which is characterised by reoccurring fever similar extended hemiclonic seizures with afebrile generalised tonic clinic seizures, myoclonic seizures and absence seizures. As time passes, youngsters with Dravet syndrome produce critical Understanding disabilities, impaired language and feeding problems. Presented the complications in managing Dravet syndrome, the array of seizures it could possibly function, along with the affect it may have on Standard of living both of those for children with Dravet syndrome and their carers, the committee agreed to advise that individuals with Dravet syndrome ought to have an Grownup or paediatric neurologist with know-how in epilepsy involved in their treatment with the goal of facilitating prognosis, enhancing entry to even further investigations, and making sure that appropriate therapy is delivered.
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Therapies. Your son or daughter may possibly gain from educational intervention systems (for delayed advancement) Along with Actual physical, occupational or speech therapy to address any challenges which will come up.
No financial the pokies evidence was determined for monotherapy, Hence the committee agreed, based mostly on their pro view, that sodium valproate ought to be the main drug of decision in people with a verified diagnosis of Dravet syndrome.
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It’s terrifying to observe your son or daughter Use a seizure. It doesn’t get much easier being aware of that after they recover, they’ll possible practical experience A different one particular in the future. Here is the truth of living with Dravet syndrome.
Involvement of the neurologist with know-how in epilepsy during the treatment of individuals with Dravet syndrome is normal existing observe, thus the committee didn't Feel this recommendation would result in increased charges or source use.
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